MAREP and ASC E-Forum for A Changing Melody
The following organizations, all established as leaders in the field, are available to provide additional resources to our users.
For persons with dementia and their partners in care
Compiled by
David Knight, Janet Knight and Frances Morton
FOR PERSONS WITH ALZHEIMER’S DISEASE OR ANOTHER DEMENTIA
Dementia Advocacy and Support Network International
DASN International: Dementia Advocacy and Support Network International. “A worldwide organization by and for those diagnosed with dementia, working together to improve our quality of life.” Includes a “Chat Line,” shared by people around the globe who are living with early stage dementia.
FOR YOUNG PEOPLE
Children:
http://www.alzheimer.ca/en/Living-with-dementia/Staying-connected/Helping-children (English)
http://www.alzheimer.ca/fr/Living-with-dementia/Staying-connected/Helping-children (French)
Teens:
http://www.alzheimer.ca/en/Living-with-dementia/Staying-connected/Helping-teens (English)
http://www.alzheimer.ca/fr/Living-with-dementia/Staying-connected/Helping-teens (French)
FOR CARE PARTNERS
An excellent series of interviews of value to families and other caregivers for whom Alzheimer’s or another dementia is a daily concern. Click on “Experiences,” scroll down to and click on “carers of people with dementia.” Includes interviews on diagnosis, becoming a carer, men and women caring for partners, caring for parents, caring with young children, and on ethical and other decisions.
ElderCare Online provides links to information and feedback from supportive peers and professionals.
Empowering CaregiversTM includes articles, humour, inspirational comments, recommended reading, keeping a journal, and more for family, friends, and others who assist loved ones in need.
All ENCOMPASSING
Information from the Alzheimer Society of Canada plus excellent “Forums” for persons with the disease, families, and caregivers. Also a fascinating collection of original written and art work: click on “Creative Space.”
Britain’s leading care and research charity for people with dementia, their families, and carers. In box at left, under “About Dementia,” click on “Alzheimer’s Talking Point” for personal messages.
A volunteer run site, with a wide range of sound source material, for patients, caregivers, and families coping with diseases, including Alzheimer’s. Click on “Diseases and Conditions” and go to “Alzheimer’s.”
Site of the National Alzheimer’s Society in the USA. Many links.
FACTS, RESEARCH, RESOURCES
USA National Institute on Aging’s site. Facts and research findings.
National Institute of Neurological Disorders and Stroke
USA National Institute of Neurological Disorders and Stroke. Click on “Disorder Index” then “A” and go to “Alzheimer’s Dementia.”
USA National Library of Medicine
USA National Library of Medicine. In top left box, click on “Health Information,” click on “A” under “Health Topic by Letter,” and scroll down to “Alzheimer’s Caregivers” and “Alzheimer’s Disease.”
Leading USA medical centre’s site, with sound information.
Murray Alzheimer Research and Education Program
Schlegel - UW Research Institute for Aging
University of Waterloo, LHI
200 University Ave, West
Waterloo, Ontario
Canada N2L 3G1
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